Clarification and correction on
Ethan's treatment plan or as it is referred to at the hospital Ethan’s Road
Map:
The Chemo part is like an Outline with the Roman numerals (
I., II., III.) represent what we are calling “rounds” and the each round has
what the hospital calls “Cycles” of Chemo (A. and B.) The kind of Chemo he
receives during cycle A is different than Cycle B.
With that in mind here is the
Plan. Again this is the plan and the chances of us staying in line with the
plan are slim to none. Based on the truthful advice of those that do this all
the time and are willing to be upfront and honest. We are setting the expectation
that we will not be done with this till later dates than listed below and then
it will take a good year for things to recover (i.e. his strength, chemo fog,
etc..)
Here is the Road Map:
I.
Round 1
b.
Cycle B
Done
MRI
II.
Round 2
b.
Cycle B, January 8, 2014
MRI
III.
Round 3
a.
Cycle A, January 29, 2014
b.
Cycle B, February 19, 2014
MRI
IV.
Radiation starts March 5, 2015 (5 days a week for 4
weeks)
Again we don’t expect this to go as planned but hope that it
will.
Ethan is doing well and has started back up doing home school
again. His eyes are still steadily improving however they are not yet good enough
to play video games or read. He can make out letters and words but it seems to
be like trying to read the letters of the distorted images (usually letters) on
a web page that makes sure you are not a computer. Reading an entire page of
that would tire me out too. Still lots of laughter and joy in the home.
What good news to start this day and New Year. The tumor is OUT. The further treatment is planned to keep it that way. God bless your family. He is GOOD. He is GOD! Aunt Ethel
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