Yesterday, we decided to have the Tordial given every 6 hours and that has allowed us to stay on top of the headaches the last 24 hours. Prior to that, he was getting bad headaches about every 12 hours they were bad enough he would squirm and moan due to the pain. We have been pushing hard to not use the Valium.
I brought up some comedians on computer yesterday and he couldn’t help but laugh and after about 5 min asked me to shut it off cause it hurt to laugh. Still has his humor :) Today’s nurse was named Mary and Ethan asked her if he was her little lamb. lol
He ate better yesterday too.
He is still sleeping 20 hours a day. We have been pushing to get him to stay awake longer.That has proven tough. This morning, Dr. Greene came in and grunted because Ethan was still asleep. This is why we're doing an MRI and an eye exam for Monday(today) because all this sleep has him (Dr. Greene) “puzzled.” It’s not that Ethan is not trying, he just can’t stay awake!
The blurry vision is still there and he asked mom today if that would go away. He is clearly processing thru that…. So am I. YUCK! They say it will get better, but Beth mentioned she read some report that mentioned the edema's (swelling) around the Thalamus and the Occipital Lobe but also the Brain Stem. This had not been shared with us. I read it myself tonight and now need to decide how to handle it. Makes a guy wonder what else is not being told??
We are very grateful for all the family support we have received this past week!!
The updates are so good to read Drew...thanks for the details. Push to get hard copies of reports...fully informed is always good...not as easy to overcome if not sure what's going on! Ethan is blessed to have you and Beth standing in the gap for him! Prayers continue!! The Elges.
ReplyDeleteI pray that you will get the information that you need to continue to make the right decisions for Ethan's care. As a survivor, I offer a few thoughts of advice based on what I went through. When you find yourself at a crossroads, pray for God to show you a sign for the right path to take guiding you to the right care plan. Do not hesitate to seek a second opinion if you don't find peace with something that you are being told. Push to get the actual copies of the reports. Also, remember that each Pathologist and Radiologist gives an opinion as well. My entire treatment plan changed based on a second opinion. In other words, you can have Ethan's lab work, the tumor specimen and MRI's sent to another facility to be over-read for a second opinion as well. Different physicians treat medical conditions in different ways. Pray and make your decisions regarding next steps for Ethan's care based on where you believe God guides you. Will keep you all in our prayers.
ReplyDelete12/5: Continuing to pray for Ethan. Anxiously awaiting the next update. :)
ReplyDelete